I started this site after my son, Vinny, was diagnosed with cholesteatoma in October 2001 at the age of six after countless visits to the pediatrician's office for ear infections since infancy.   As soon as the surgeon told us what he had and the complications it could cause I tried to learn as much about it as possible. 

During the learning process I joined a YahooGroup for Cholesteatoma patients and their families and also visited www.cholesteatoma.org.   This is when I discovered that it was not as 'rare' as I first assumed and that there are many people out there in the same situation as Vinny - many worse.  

My first reaction was to see a lawyer about the pediatricians that never made the diagnosis in six years, but after more research and time spent with the YahooGroup I decided to try to turn this into something positive.  This web site is a start, and an organization to promote awareness is the goal.  I believe that the word cholesteatoma can be something that every patient, every parent, and every doctor will know in the near future with your help.

 Lisa Mazzarell

Contact Information

Telephone

321-433-3356

Postal address

1443 Floyd Drive

           Rockledge, Florida  32955

Electronic mail

General Information: crginformation@yahoo.com